迷迷糊糊的疱疹系列研究----先从感叹开始 [复制链接]

Saturday, February 05, 2011 at 12:58 PM
I can say my OB's went back to being pretty rare.  I'm using bioidentical hormone cream (estrogen and progesterone), and take acyclovir when I get prodromal.  I also eat/drink a lot of probiotics, which I'm convinced help with immune health in general - kefir and kimchi, which I make myself.  I'll tell you how if your'e interested.  Don't despair - it's time-limited, at least.

March 04, 2011SageHas anyone used any of the "herbal" or alternative treatments?  Medavir, Dynamiclear, H-Away, etc......



Any successes?

Sage

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Healthychoice HealthCentral Community Member
Send MessageSubscribeSaturday, March 05, 2011HealthychoiceJust wanted to chime in...I too, am thankful to have found this chorus of voices for women who are dealing with this issue.  I am almost 51, acquired GH at age 24, and have always had light and infrequent outbreaks (maybe 2 or 3 times per year, brought on by my periods.) - Would almost forget I even had the condition.  However, over the past year or so, my periods have become lighter and more sporadic (occurring every 4 - 6 weeks.)   Lately, I have noticed that the OB's have become more frequent - having one right now, and just had one two weeks ago!  However, they are very light - just one little tingling bump.  It seems as though any little rubbing or irritation will bring it on.  I have also recently had this relentless flu virus that is going around, and had a light case of shingles a few months ago, so maybe these are factors?  I also thought I had a UTI a month or so ago (I've had maybe only two of these in my entire life) but the test was negative for it - just had that slight burning sensation.  Maybe this is being caused by a bit of vaginal dryness?  I am going to ask my GYN for the cream.   I am so relieved by this post, as I was starting to think that I had serious auto-immune issues, and maybe needed to be tested for HIV.  I sure wish that they would do more research/talk more about this issue, as it would possibly relieve some of our fears - by the way, I am in WAY less of a stressful time of my life than I have ever been before - very happy and laid back, so I don't think that is a factor at all - HAS to be a link between the hormone fluctations.  I too,would like to hear from more women on the other side of menopause-who have been through the process and could offer more insight.  Thanks to all those who have written in to add weight to my own thoughts!



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troglodyte
Saturday, March 05, 2011 at 12:04 PM
Glad you found this helpful - I have, too.  (I'm the original post-er).  I'm now using estrogen/progesterone cream, about which there's some controversy, but I'm willing to risk a MAYBE couple-percent risk of cancer of the something or other in exchange for improved quality of life, personally.  Don't know if it's the hormones or the passage of time, but I'm back to my earlier state of, like you, forgetting I have it most of the time.  I'm also eating a lot of fermented foods (kefir, kimchi), as I've read that having a gut full of normal flora is a big factor in immunity - I think the whole ecosystem in there produces substances we don't understand, but which we need, and which most of us have killed off with antibiotics and over-sanitized living.  Good luck with it all!  If you write back, it shows on my email and I'll answer.  Bestest - DM

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Healthychoice
Saturday, March 05, 2011 at 12:34 PM
Wow...thanks for writing back, and for the words of encouragement.  Interesting, as I have recently read several new studies about changing the bacterial "content" of one's intestinal tract, by eating the kinds of things you are suggesting, and how enough of these things need to be eaten in order to counteract the negative types of bacteria that are put into our systems.  I have also been trying to do this, (eat more for important body fuel, rather than for pleasure.)  By the way, I forgot to say, I have never really had to take medications over my almost 27 years of having GH - to me, it was never really much of a problem (until now.)   My husband gave me GH @ age 24, and we are still married (much more happily in our older age,) so the consequences haven't been much to deal with (for me.)  I did have to take the mega-doses of Valtrex back in September when I was diagnosed with shingles.  I must say that I don't really like taking ANY type of drugs that are not absolutely necessary, but I am now considering using the cream (and thanks for your current information on that, by the way!)  It is SO important for women to talk with each other about these issues, because as the posts show, it seems that many health care "professionals" have a less-than enthusiastic attitude about these topics, when questioned.  Thanks, ORIGINAL POSTER, and best to ya!



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troglodyte
Saturday, March 05, 2011 at 02:34 PM
And to you, m'dear!  Keep me posted - I'm puttin' my money on beneficial bacteria, for the moment.  The concept reminds me of composting and soil microbiology, which I just read a book about ("Teaming with Microbes" - a little dense, but I found it a page-turner.  But then I'm a compulsive gardener. . .).  The book talked about all the mysterious ways that plant roots attract the microbes they need to break down nutrients for that particular plant.  I think Ma Nature knew what she was doing, and we should try to cooperate. . .

Also, re fermented foods - I've heard from a few different places that the longest-lived and healthiest cultures eat a lot of them.  It makes sense - we evolved before refrigeration and antibiotics, and fermentation was the main way to preserve food.

ALSO, re hormone replacement - I started after I met a doctor in his late 80's who contends that we don't stop making hormones because we get old, but that we we age because we now outlive our capacity to produce hormones.  I THINK it makes sense, although I'm reluctant to suggest it to anyone else.  I'm a nurse, now with hospice, and I do notice that women in their 80's and 90's who are taking hormones seem more vital and active.  For what it's worth. . .

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copeful
Tuesday, March 22, 2011 at 12:34 PM
I'll be 54 in a couple of weeks. I've had GH for probably 34 years. I was on Acyclovir, Zovirax for years. I am now on Famciclovir as I had commented to my PCP maybe a year and a half ago that the OB seemed to be related to Hormones but that was strictly anecdotal on my part. That's when he changed me to Famciclovir, saying I'd been on the other so long that it wasn't working. I had gotten to the point that I was only taking the Zovirax for the duration of outbreaks.  The Famciclovir is to be taken twice a day, but it didn't seem to be working. I had quit taking it because I've had ongoing back to back problems for most of a year, what I thought were OBs. I did start taking it again a week and a half ago? But now have a true herpes OB, so maybe it doesn't work for me.



I tell you I only got online today because I'm again at my wits end. I came home from work last evening and just wept, freaked the cats out. What's the old saying, `Some days it's not work chewing thru the restraints?' Or is that new? At least I still  have my sense of humor.

所以说对于女人来说也可能并不是随着时间越长症状越轻， 对于男人来讲可能是这个道理， 对于女人由于生理原因可能结果不一样。  大家如果了解了， 心里有了底好过到时措手不及， 无所适从。 我觉得没有什么迈步过去的， 迷糊现在正在经历这段时期， 每个月有半个月要与疱疹作斗争， 我的感觉， 心态一定要好， 道理一定要明白， 知识一定要清楚， 做到信息透明， 这样好过什么都不知道， 怨天尤人， 或者惊慌失措。  

希望我以上的复制的美国疱疹女战友的每个人的故事给你们启发。  你们以后也不用问迷糊关于更年期疱疹复发的问题了。 从上面的帖子中答案全有了。

有的病人几年了， 有的30多年了， 不还是活过来了吗？  怕什么!!

坚强就是胜利
迷糊

此帖如果沉了下去~迷糊姐如果不再回来~我敢肯定~此论坛的战友几乎将全部阵亡！迷糊姐~为了拯救我们~同时为了拯救自己~~我们需要你这么一位精神领袖~这才是我们战斗胜利的力量之源！跪谢~~继续战斗~！

迷糊姐真好，给我回复。我今天又发小红点。两处。也是以前发过的区域。我也知道心理作用。可惜控制不住。还担心AZ。下周去华山医院看。
我妻子怀孕七个月，一切正常。
这段时间她的鼓励和爱，让我宽慰很多。但是也让我更担心自己有什么事，不能拥有她和孩子。。。自己给自己加油吧。大家也加油。

我记得以前coolen老兄曾经告诉过我其实治愈的药已经有了， 好像在他的帖子里面也提到过， 不过那时我没有太相信他。  今天我看到美国的战友也这么说， 我感觉好像此事应该是存在的。  此战友说。  Merck公司生产的药品  叫  isentress  这个药是个对疱疹彻底治愈的药， 而且在市场上已经供应给艾滋病患者患有疱疹的病人用。 可是在美国fda就是美国药监局就是不给疱疹患者用。 不让医生开这个处方给疱疹患者。  他还希望能够让中国人和印度人先用， 然后推动美国药监局批示。  

我的理解是这样的。 美国药监局不让用， 一定有它的道理。  也许此药有严重的副作用， 用在要死的艾滋病人身上， 反正都是等死， 但是用在疱疹患者身上就不行， 因为我们没有生命危险。  或许此药还没有经过严格的临床试验， 。。。。总之， 肯定有它的原因。  

反正， 现在确实有人说其实治愈的药已经有了， 就是没有拿出来用。  你们是否记得有一次我说有一个美国战友说他遇到了他的家庭医生， 他的医生也告诉他治愈的药有了， 就是要等时间？？？  好像我的前几页帖子里面提到过。  

冥冥之中， 我感到， 上帝要来解救我们了， 就这几年吧。  再不来， 迷糊也要坚持不下去了。  

挺痛苦的， 不是这不舒服就是哪里不舒服， 总之不是痒就是疼。 这个病真是让人烦透了。  

疱疹快去见鬼吧！

主啊， 疱疹是否就是魔鬼撒旦， 主啊， 请你无论如何把这个魔鬼驱赶， 让我们这些您的忠实信徒永远得救！！！！！！！！！！！

信你的臣仆
迷糊


I am trying to take all of the above listed suppliments until a cure is found. I will not let FDA controll my health. I must do what I must to live healthy , take action. As you know isentress by Merck is said to be an effective cure for HVS and is already on the market for HIV but not aproved in the USA for herpes, thu no Doctor will perscribe it for HVS.
We need to look to get these new drug for out side of the US and find a way use the system already set up in other countries ie. China, India, to get cured or share the risk as we see fit. Below is a list by wwdamron , want to know if any of these are being tested in other countries?

才从北京回来就看见这么多好消息，迷糊顶住 我们会得救的 我准备马上结婚了 好了以后 一定去北京我们一起狂欢几天 别忘了我请客去九华山 我们一起去还愿！~

以后我如果对我女朋友坦白了~一定要她来看这个帖子~~我们都是这么坚强并且我们最后会是胜利的！我们现在只是欠缺他们的支持与关怀~只要他们给我 们一点点勇气，我们最终将会是最值得依赖的人~

迷糊提到的isentress  药和coolen提到的Bavituximab药看样子是现在治愈的药物，只是没有用于普通的老百姓中。不过这两种药物都是用于对付 艾滋病的。

九华山算我一个，这病真能考验人啊，那一天治好啦，真不知道会是什么情景啊，我想应该笑不出来呀，迷糊姐加油，大家加油！！！

迷糊姐楼100页啦，我来翻翻页！！

还是我来翻页，迷糊姐姐的信箱已经满啦